“Can My Health History Help Solve the COVID crisis?” The answer is YES! Two large national longitudinal health studies are actively recruiting LGBTQ participants. Mahri Bahati of PRIDEnet and Dr. Jeff Whittle representing the All of Us study will present how their studies have used data they’d already gathered to contribute to understanding COVID-19. They’ll describe the studies’ privacy and security issues, study aims, results so far, and how people can enroll.
Clicking on timestamps will redirect you to the corresponding video section on YouTube.
Loree’s introduction 0:00
Mahri Bahati introduction 4:04
Overview of presentation 5:13
What is community engaged research? (Video) 6:03
PRIDEnet community engagement background 10:20
What is PRIDEnet? 12:12
Reaching communities through partnership 14:04
The PRIDE Study 15:24
The PRIDE Study video 16:15
What is The PRIDE Study? 18:35
What are we learning from the PRIDE Study? 20:20
Dissemination 23:14
All of Us research program 23:50
All of Us video 25:20
What is Precision Medicine? 28:24
All of Us mission and objectives 30:48
A transformational approach to diversity 31:12
Participant activities in All of Us study 32:25
Kinds of questions All of Us may help answer 33:08
Sign-up process 34:08
Resources available to researchers 34:20
Jeff Whittle and All of Us in Wisconsin 35:27
Privacy of data 40:52
Privacy and security with The PRIDE Study 44:35
Data use for machine learning? 45:51
Percentage of non-binary participants 47:53
What kinds of data are being collected to show resilience? 54:52
Wrap-up, what’s coming up next? 58:08
Speakers: Jeffrey C. Whittle, MD, MPH, and Mahri Bahati, MPH
Recorded on June 27, 2020.